Happy 2nd Birthday Ry-Guy

For those of you non Facebookers here is a Rylan on his 2^nd birthday. We have had so many ups and downs this past year but the ups always outshine and wipe away the downs. Here is to many many many more years of happiness. We love you buddy!

Goodbye Gluten

Things have been going great lately, Rylan is 100% himself and healthy again.

We got some results back on his tests last week. He does have what the doctor calls early signs of celiac disease.  Those results paired with things like low growth hormones, small size, vitamin deficiencies and family history has allowed him to diagnose him with celiac disease and restrict all gluten from his diet. This is kind of good news. We know something isn’t right with the little man so perhaps something as simple as removing an item from his diet to see improvements makes us happy. No medications or growth hormones!!  This will be a challenging lifestyle change but nothing we can’t handle. So all you gluten free people, send over the advice or ideas we need them. We have not started this change yet, we are getting our ducks in a row and arms wrapped around the whole process first. Ry has a couple more days to enjoy his obsession with carby snacks like goldfish.

The results of the pituitary gland look normal. The metabolic specialist believes the low growth hormones are a factor in the celiac results. She will have Rylan back in 6 months to retest him, she is confident that this change in his diet will show better test results and growth in Rylan.

Good Things, getting answers and hopefully solutions.

Happy Hump Day!

Done!

Heading home now, everything went well. Results of MRI and Endo later this week. Both ears needed new tubes and were still infected, immediate relief for Ry on that front. He woke up groggy for a few minutes, then did some gaming and we hit the road. He is now enjoying his new friend Grover, snacks and drink and acting like nothing ever happened.

We are in!

They accepted Rylan for surgery this morning, YIPPY!
He has had a very exciting morning the only downer no food or drink. Here is the morning so far. Going over his health history with the nurse, watching and dancing with Elmo, playing with dad, riding around in a fun car, driving the car.

Rylan has always had a dislike for people in scrubs, however today that changed or maybe because of his last week. Doctors, nurses and anesthesiologist keep coming in and introducing themselves with a hand shake to Mike and I. Today Ry has been sticking his hand out to them for his introduction and it is hysterical!
He is sleeping well now, first MRI, then Endoscopy then ears. We should have him back in our arms in a couple hours.

Hanging In There

We are hanging in there as my wonderful Grandma Ryan would say.
We have not heard back from the doctors regarding all the tests Ry had done in the ER, we are going to assume that is a good thing and wait patiently. We took Rylan to Children's yesterday to get a better explanation of this:

Ry accumulated welts all over his body on Friday. With already getting the green light for surgery we were getting nervous and thought we better have them checked out. It is called Erythema Multiforme which is basically a reaction to a medication or virus. The doctor stopped the medication for his ear infection and started him on a new one, she thinks it was a reaction to a virus but wanted to be safe. Both ears are now infected so Monday couldn't come soon enough. If nothing changes we can proceed, if anything happens health wise we cancel. After further conversation at children's we decided we will bring him in as scheduled and let them tell us if he is well enough to go under. Only time will tell and less pressure and stress for Mike and I.

Today he is much happier and seems better all the way around so moving in the right direction.
We will talk more tomorrow, until then feel free to send well wishes and prayers our way.
Here is the man this morning with a sunshine headband and milk drool.