We had our visit with the GI doctor on Tuesday morning. Rylan had a blast in the waiting room playing with the toys but disliked the exam room mucho. He was not a very cooperative little boy, we will leave it at that.
The doctor had some blood work done to look at how his liver functions and to test him for celiac disease. We just got the results back now. The liver blood work all came back normal; things are working as they should. The celiac testing is a panel of a few different tests, one of the tests called IgA, it showed Rylan was deficient. IgA is an antibody, so it actually helps to understand why he is sick all the time with colds and what not, he can’t fight things off. So anyway when this result comes back as deficient it basically alters the rest of the results so they are no longer accurate. That means they can’t tell us anything about the results on the rest of the celiac panel because they might not be accurate. This means…are you ready for it……Rylan has to have his intestine biopsied. So back to Children’s we go and he will be put under, scoped and the doctor will take a little piece of his intestine out to tell us whether he has celiac disease or not. IgA deficiency is linked to celiac disease but only around 4%, however the other factors of his size, family history, health history brings the percentage up.
This is not yet scheduled but we are excited because the other doctor has been wanting an MRI of his pituitary gland from his low growth hormones. I told her the other day it will not happen until December, per the neurosurgeon unless she thinks it is really necessary. She came back and said that is fine….BUT she needs a growth hormone stimulation test done on him soon. I just scheduled it and I would rather poke my eyes out then experience 4-6 hours of drawing blood every 30 minutes on a little boy who has not eaten or drank for 24 hours. Now I get to tell her she can have her MRI and we can cancel the stimulation test. WOOT WOOT
HAPPY FRIDAY HAPPY WEEKEND
This was him laughing before things got rocky in the exam room.
T
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