Terrible horrible no good very bad night.

Yesterday Rylan came home from school early with a fever, we took him immediately to the doctor to have those ears looked at. The ear infection had not cleared up and was worse; we got more meds and had a nice little evening until…

Mike and I were just about to fall asleep when I said, shoot we never gave Ry more tylenol before bed. After a short discussion we agreed we should wake him and give him some to keep that fever down. Mike went into his room and as he approached him he began a full fledge seizure. In the past we have only seen possible seizure activity it has never been confirmed. He is usually in the postictal state. Last night that was not the case, Mike yelled for me and we began to experience what an actual seizure is live in the moment. It was awful the full body shaking and foaming at the mouth went on for several minutes which felt like eternity. Mike was calm and collective doing and saying all the right things, I was in panic mode doing really insane things while pacing around the house like a lunatic. The ambulance came and reassured us we were taking the right steps. We had the medicine ready to give him but held out as we were not sure it was going on long enough to give it to him. The aftereffects of the medicine are very negative. Mike and Rylan rode downtown to the hospital in the ambulance, he was finally coming out of the unconscious state by the time they arrived to the emergency room or shortly after, I would say it was about an hour. We had the paper work on what specifically the doctor wanted done on Rylan if this was to occur so they went right to work getting all the tests completed. Our neurologist was on call so he was involved last night and will be following up today on results. As time went by he slowly came back to himself and was acting normal again. They were discharged around 4 am so Cece and I drove to get them. She was a real trooper in the car keeping my mind on really important things, here is a quick video (just sound) it made me laugh and thought maybe you wanted to know what goes on in her mind at 4 in the morning when we are going to pick up Daddy and Rylan at the ER.

Once we got them picked up Rylan blew raspberries all the way home happy as could be. They let us know having a seizure like that is equivalent to sprinting a full marathon; it takes a huge toll on the body so he will be tired for a few days. We are now confident the other episodes had this same beginning we just were not in the room to see it, we only have found him when he is coming out of the seizure. His fever was 103 last night when this started so it was a febrile seizure.

So grateful to have gone and checked on him at that exact time. So grateful Cece was sleeping and didn’t come out of her room and see all the medics were gathered around her little brother. So grateful he is in his room sleeping right now at home. So grateful for Mike, who can handle these situations so well. Clearly we are being taken care of really well by the big man!

I will keep you updated on the results from all the tests done last night.