Things have been going great lately, Rylan is 100% himself and healthy again.
We got some results back on his tests last week. He does have what the doctor calls early signs of celiac disease. Those results paired with things like low growth hormones, small size, vitamin deficiencies and family history has allowed him to diagnose him with celiac disease and restrict all gluten from his diet. This is kind of good news. We know something isn’t right with the little man so perhaps something as simple as removing an item from his diet to see improvements makes us happy. No medications or growth hormones!! This will be a challenging lifestyle change but nothing we can’t handle. So all you gluten free people, send over the advice or ideas we need them. We have not started this change yet, we are getting our ducks in a row and arms wrapped around the whole process first. Ry has a couple more days to enjoy his obsession with carby snacks like goldfish.
The results of the pituitary gland look normal. The metabolic specialist believes the low growth hormones are a factor in the celiac results. She will have Rylan back in 6 months to retest him, she is confident that this change in his diet will show better test results and growth in Rylan.
Good Things, getting answers and hopefully solutions.
Happy Hump Day!
well, I highly recommend a membership to Lakewinds co-op, if you don't have one already...
ReplyDeleteread labels ~ it can be surprising how many products have wheat hidden in them, like soy sauce, tomato soup, frozen veggies...
we should have a chat some time this summer around the fire pit :)
Don't despair about gluten free. So much out there is available even in the snack department. Plus mike is such a genius in the kitchen that I'm sure this will be like a fun challenge for him. Rylan is so young right now that he will be dazzled by all the new food. Recently had some really good spelt flour crackers. Even Liam liked them.
ReplyDeleteThat sounds great. I love the picture of him "reading" the book! My cousin's little guy has lots of allergies, etc and they also are having them go gluten free. She has lots of recipes and ideas if you want me to have her get in touch with you. It's been probably about 5 months since they have had him on a gluten free diet. He will be 4 in October.
ReplyDelete